Only parents have first hand experience with their child before & after the BRAIN INJURY. They have seen their child before & after the brain injury. Professionals come & go. Programs Change. Parents are the only constant in the child's life. No one will ever know a child better than a parent. Professionals can help parents learn about brain injury and how to use that knowledge to get needed services.
PARENTS ARE THE UTLIMATE CAREGIVERS, ADVOCATES, EXPERTS, AND CARE COORDINATORS.
Memo's of a Mommy...
When Mya Joy began her therapy and rehabilitation I felt so badly for the other kids that were in wheelchairs and had obvious injuries and disabilities.
It was not until the weekend before we were to be released from the hospital that all the children were on the playground for a therapy session and asked to roll a ball down a small slide. All the parents, who at this point had become as close as family, were watching the children move slowly and steadily roll the ball down the slide with ease and care.
The tranquility of the moment was shattered when Mya Joy had no control over her body and she did not want to let go of the ball and followed it down the slide head first sending all the parents and therapists into a panic! Once things had settled and Mya Joy was again safe on stable ground another mother mentioned to me that she was the lucky one because her child could see their disability which made understanding their limitations so much easier.
